Typical Activities |
- Talk with patients about their cancer experience and treatment challenges
- Create and manage support groups
- Act as a liaison between patients, clinicians and family members
- Share personal story to raise awareness or funds for research, support, advocacy
- Educate local groups about cancer experience and care
- Provide resources and services to patients and family (e.g., rides to treatment)
- Share, moderate, curate on social media
- Raise awareness of cancer events, treatment advancements, and the need for funding
|
- Learn about lung cancer science and research
- Interact and communicate effectively and appropriately with researchers, regulators, industry, and government agencies
- Represent and share patient perspectives for ALL lung cancer patients (not just those with your type or stage of lung cancer or personal characteristics)
- Participate in grant reviews, Institutional Review Boards, patient advisory boards for pharma
- Provide feedback on research questions and design
- Know when it is NOT appropriate to share some or all of your cancer story
|
